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MAY 30, 2006

SCIENCE
A guide to bioethics experts

IN THE NORTHEAST
George Annas is a professor and chairman of the department of health law, bioethics and human rights at Boston University School of Public Health. He has authored or edited 16 books on bioethics and law. The most recent is American Bioethics: Crossing Human Rights and Health Law Boundaries (Oxford, 2005). His focus is patients' rights. Annas co-founded Global Lawyers and Physicians, a transnational association of lawyers and physicians whose goal is to promote human rights and health. Contact 617-638-4626, annasgj@bu.edu.
Dr. Michael Grodin is director of the bioethics and human rights program and professor of health law, bioethics, human rights, socio-medical sciences and community medicine and psychiatry at the Boston University Schools of Public Health and Medicine. He is also a professor of philosophy in the College of Arts and Sciences. The five books he has written or co-edited include The Nazi Doctors and the Nuremburg Code: Human Rights in Human Experimentation (Oxford University Press, 1992); Children as Research Subjects: Science, Ethics and Law (Oxford University Press, 1994); and Perspectives on Health and Human Rights: A Reader (Routledge, 2005). He is working on a new book, titled Mad, Bad or Evil: Physician Involvement in Human Rights Abuses from Nazi Germany to the Former Yugoslavia. His primary areas of interest include the relationship of health and human rights, bioethics, and the philosophy of psychiatry and psychoanalysis. Contact 617-638-4626, grodin@bu.edu.
Ronald Green is a professor of religion and professor for the study of ethics and human values at Dartmouth College in Hanover, N.H. He is also director of the college's Ethics Institute and teaches in the department of community and family medicine at Dartmouth's medical school. In 1996 and 1997, Green served as director of the Office of Genome Ethics at the National Human Genome Research Institute of the National Institutes of Health. His research interests are in genetic ethics, biomedical ethics and issues of justice in health-care allocation. He has written six books including The Human Embryo Research Debates: Bioethics in the Vortex of Controversy (Oxford University Press, 2001). In 1994 he was a member of NIH's Human Embryo Research Panel, a commission appointed to recommend policy for federal funding of research on the pre-implantation human embryo. In 1998-99, Green was president of the Society of Christian Ethics. He heads the Ethics Advisory Board of Advanced Cell Technology, a biotechnology company involved in therapeutic cloning research. In 2005, Green received a Guggenheim Fellowship to write a book on human gene enhancement. Contact 603-646-1263, Ronald.M.Green@Dartmouth.edu.
Daniel Wikler is a professor of population ethics at the Harvard School of Public Health at Harvard University in Cambridge, Mass. His interests include ethical dimensions of health resource allocation, the ethics of experimentation with human subjects and ethical dilemmas of global public health practice. A philosopher by training, Wikler served as the first staff ethicist at the World Health Organization in Geneva. He was co-founder of the International Association of Bioethics and the American Association of Bioethics. Wikler has been an Honorary Fellow in the Bioethics Faculty of the Chinese Academy of Social Sciences and Peking Union Medical College, and a Fellow of the Ford Foundation. He has served on the advisory boards of the Asian Bioethics Association and the Pan American Health Organization Regional Program in Bioethics. Contact 617-432-2365, wikler@hsph.harvard.edu.

IN THE EAST
Nancy Dubler, a lawyer, is director of the division of bioethics in the department of epidemiology and population health at Montefiore Medical Center and professor of bioethics at Albert Einstein College of Medicine, both in the Bronx, N.Y. She is also the founder of the bioethics consultation service at Montefiore. Dubler lectures extensively on care of vulnerable populations, and she has written articles on termination of care, long-term care, adolescent health, prison health care and AIDS. She consults with federal agencies and national working groups and served as co-chairwoman of the Bioethics Working Group at the National Health Care Reform Task Force. She wrote Ethics on Call: Taking Charge of Life-and Death Choices in Today's Health Care System (Vintage, 1993) and Mediating Bioethical Disputes (United Hospital Fund, 1994). Contact 718-920-6226, ndubler@montefiore.org.
Bonnie Steinbock is a philosophy professor at the University of Albany, State University of New York, a faculty member of the Alden March Bioethics Institute at Albany Medical College, a fellow of the Hastings Center and a member of the Ethics Committee of the American Society for Reproduction and Medicine. She specializes in reproduction and genetics. Her recent articles have covered reproductive cloning, wrongful life and procreative decision making, the definitions of parenthood, moral status, and embryonic stem cell research. She wrote Life Before Birth: The Moral and Legal Status of Embryos and Fetuses (Oxford, 1992) and edited The Oxford Handbook of Bioethics (Oxford, forthcoming). She co-edited Public Health Ethics: Theory, Policy, and Practice (Oxford, forthcoming in 2006), Ethical Issues in Modern Medicine (Ashgate, 2002) and Killing and Letting Die (Fordham, 1994). Contact 518-442-4262, steinbock@albany.edu.
Lee Silver is a professor of microbiology and public affairs at the Woodrow Wilson School of Public and International Affairs at Princeton University in Princeton, N.J. His books include Challenging Nature: The Clash of Science and Spirituality at the New Frontiers of Life (Ecco, May 2006) and Remaking Eden: How Genetic Engineering and Cloning Will Transform the American Family (Harper, 1998), which deals with genetic enhancement, or "reprogenetics" - selecting and engineering a child's genes. He has published more than scientific articles in the fields of genetics, evolution, reproduction, embryology, computer modeling and behavioral science, and scholarly papers on topics involving biotechnology, law, ethics and religion. Contact through his secretary at 609-258-2684, shilcha@princeton.edu.
• Dr. Barron H. Lerner is a historian, internist and associate professor of medicine and public health at the Columbia University College of Physicians and Surgeons. He also is a member of the Columbia-Presbyterian Medical Center Ethics Committee. Lerner has organized teaching initiatives in bioethics and the medical humanities at Columbia. These include co-directing the ethics and values curriculum for medical students and directing the Jay I. Meltzer Fellowship in Medical Ethics for internal medicine residents. He wrote Contagion and Confinement: Controlling Tuberculosis Along the Skid Road (Johns Hopkins Press, 1998). Contact 212-305-5154, bhl5@columbia.edu.
Ruth R. Faden is the Philip Franklin Wagley Professor of Biomedical Ethics and executive director of The Phoebe R. Berman Bioethics Institute at Johns Hopkins University in Baltimore. She is also a senior research scholar at the Kennedy Institute of Ethics, Georgetown University. Faden is co-author of Social Justice: The Moral Foundations of Public Health and Health Policy (Oxford University Press, 2006), A History and Theory of Informed Consent (Oxford University Press, 1986), and HIV, AIDS and Childbearing: Public Policy, Private Lives (Oxford University Press 1996). Faden is a member of the Institute of Medicine and a fellow of the Hastings Center and the American Psychological Association. Contact 443-287-0413, rfaden@jhsph.edu.
Patricia King is a professor of law, medicine, ethics, and public policy at Georgetown University. King has served as deputy director of the Office of Civil Rights, special assistant to the chairman of the U.S. Equal Employment Opportunity Commission and member of the Recombinant DNA Advisory Committee; the President's Commission for the Study of Ethical Problems in Medicine and Biomedical and Behavioral Research; National Commission for the Protection of Human Subjects of Biomedical and Behavioral Research; and on the Ethics, Legal, and Social Issues Working Group of the Human Genome Project. King is co-author of Cases and Materials on Law, Science, and Medicine (Foundation Press, 1999). Contact 202-687-8099.
Georgia M. Dunston is a human geneticist, former chairwoman of the microbiology department at Howard University College of Medicine in Washington, D.C, and founding director of the university's National Human Genome Center. She served as program director of the coordinating center for the African American Diabetes Mellitus Study, an international collaboration that studies the genetics of Type 2 diabetes in ancestral populations of African-Americans, and the coordinating center for the African American Hereditary Prostate Cancer Study Network, a national cooperative formed to map genes for prostate cancer in African-Americans. In 2003, she established GRAD (Genomic Research in the African Diaspora), a biobank that traces the genetic factors of diseases - including diabetes and prostate cancer - that affect African-Americans disproportionately. An authority on how genetics and race interface, Dunston maintains that there is no one-to-one correlation of racial groups with the structure of the human genome. Each individual is a unique expression of the human genome and uniquely related to the whole of humankind. Contact 202-806-9438.

IN THE SOUTHEAST
John Arras is Porterfield Professor of Biomedical Ethics and Professor of Philosophy at the University of Virginia and a fellow at the Hastings Center. He co-edited Ethical Issues in Modern Medicine (Mayfield, 1998) and edited Bringing the Hospital Home: Ethical & Social Implications of High-Tech Home Care (Johns Hopkins, 1995). He has written about long-term care issues, AIDS, death and dying, assisted suicide, public health ethics, research on human subjects, international research ethics and theories of global justice. He is currently working on method in practical ethics (e.g., casuistry, narrative), ethical implications of long-term contraceptives and the rationing of health care. He is currently on sabbatical; contact through administrative assistant Carolyn Randolph, 434-924-7868.
Jonathan D. Moreno is a professor of biomedical ethics at the University of Virginia in Charlottesville, director of its Center for Biomedical Ethics and Senior Fellow at the Center for American Progress in Washington, D.C. He is a member of the Institute of Medicine committee on prisons and was co-chairman of the Committee on Guidelines for Human Embryonic Stem Cell Research. He is a bioethics adviser for the Howard Hughes Medical Institute, a faculty affiliate of the Kennedy Institute of Ethics at Georgetown University, and a Fellow of the Hastings Center and the New York Academy of Medicine. His books include Is There an Ethicist in the House? (Indiana University Press, 2005); In the Wake of Terror: Medicine and Morality in a Time of Crisis (MIT Press, 2003); Undue Risk: Secret State Experiments on Humans (Routledge, 2001); Ethical and Regulatory Aspects of Clinical Research (Johns Hopkins, 2003); Ethics in Clinical Practice (Aspen Publishers, 2000); and Arguing Euthanasia (Touchstone/Simon & Schuster, 1995). His next book, tentatively titled Mind Wars: National Security and the Brain, will be published by Dana Press this year. Contact 434-924-8274, jdm8n@virginia.edu.
Nancy M.P. King is a lawyer and a professor of social medicine who teaches legal, social and ethical issues to medical students at the University of North Carolina at Chapel Hill. Her scholarship focuses on bioethics and health law, focusing on roles and responsibilities in health-care decisions, human subject research ethics, and "everyday ethics." She has worked extensively on informed consent in health care, neonatal intensive care, experimental technologies, international research ethics and end-of-life decision-making. She is currently researching the benefit of human gene transfer research and the ethical, legal and social implications of large-sample gene discovery and disclosure. She wrote Making Sense of Advance Directives (Georgetown University Press, 1996) and co-edited Beyond Regulations: Ethics in Human Subjects Research (UNC Press 1999) and The Social Medicine Reader (Duke University Press, 1997). Contact 919-843-8270, nmpking@med.unc.edu.
• Dr. Jeffrey Baker is medical director of Duke University Medical Center's children's primary care department,a clinical professor of pediatrics and a faculty member of the Duke Center for the Study of Medical Ethics & Humanities. A medical historian, Baker works on issues in medical technology and child health, such as the evolution of premature infant technology. Much of this work is synthesized in his comparative history of the origins of neonatal medicine in France and the United States, The Machine in the Nursery: Incubator Technology and the Origins of Newborn Intensive Care (Johns Hopkins University Press, 1996). He is studying 20th-century controversies involving childhood immunizations and the role of the whooping cough vaccine in shaping U.S. immunization policy since 1974. Contact 919-668-9000, baker009@mc.duke.edu.

IN THE SOUTH
Dr. Ellen Wright Clayton is the Rosalind E. Franklin Professor of Genetics and Health Policy, a professor of law, a professor of pediatrics and the director of the Genetics and Health Policy Center at Vanderbilt University in Nashville, Tenn. An internationally recognized expert on law and genetics, Clayton has published two books and many scholarly articles. She has advised the National Human Genome Research Institute as well as numerous other federal and international bodies on topics including children's health and the ethical conduct of research involving human subjects. Contact 615-322-2598, ellen.clayton@vanderbilt.edu.
E. Haavi Morreim is a professor of bioethics at the college of medicine at the University of Tennessee in Memphis. She teaches clinical ethics and consults in medical ethics. She also chairs the Independent Patient Advocacy Council for the AbioCor artificial heart trial. She is the author of Balancing Act: The New Medical Ethics of Medicine's New Economics (Georgetown University Press, 1995) and Holding Health Care Accountable: Law and the New Medical Marketplace (Oxford University Press, 2001). Contact 901-448-5725, hmorreim@utmem.edu.
Dr. Vanessa N. Gamble is director of Tuskegee University's National Center for Bioethics in Research and Health Care in Tuskeegee, Ala. A physician and medical historian, Gamble chaired the presidential committee on the legacy of the infamous Tuskegee syphilis study conducted by the U.S. Public Health Service from 1932-1972, which secured an apology from the government in 1997. She is a health policy and medical education consultant with 20 years' experience as a researcher, teacher and administrator in issues related to race and American medicine. Previously she was director of the Center for the Study of Race and Ethnicity in Medicine at the University of Wisconsin School of Medicine. Contact 334-724-4612, bioethics@tuskegee.edu.
Arri Eisen is director of the Program in Science and Society at Emory University's Center for Ethics in Atlanta and a senior lecturer in biology. Eisen teaches research ethics to faculty, undergraduates, graduate students, postdoctoral fellows and physicians. He researches the basic science of gene regulation and research ethics education. He is co-author of "The Absent Professor: Why We Don't Teach Research Ethics and What to Do About it," (published in The American Journal of Bioethics) and co-editor of the forthcoming two-volume collection of essays, Science, Religion, and Society: An Encyclopedia of History, Culture and Controversy (ME Sharpe). Contact 404-727-4354, arri.eisen@emory.edu.
Gregory E. Pence is a professor of philosophy and bioethics at the University of Alabama at Birmingham's school of medicine. His teaches the history of ethical issues in medicine since World War II. He wrote Recreating Medicine: Ethical Issues at the Frontier of Medicine (Rowman & Littlefield, 2000) and Who's Afraid of Human Cloning? (Rowman & Littlefield, 1998). He is in favor of human cloning and has testified before Congress on the topic. Contact 205-934-8922, pence@uab.edu.

IN THE MIDWEST
• Dr. Stuart Youngner is director of the Center for Biomedical Ethics and a professor of bioethics, medicine and psychiatry at Case Western Reserve University in Cleveland. He has written and lectured on physician-assisted suicide, decisions to limit life-sustaining treatment, advance directives, definitions of death, ethics committees and ethical issues in organ retrieval and transplantation. He recently co-directed a national task force that examined the need for ethics committees' standards and consultation. Contact 216-368-6196, sxy2@po.cwru.edu.
Eric Juengst is an associate professor of bioethics at Case Western Reserve University School of Medicine who specializes in the ethical issues of human genetics, concepts of health and disease, and the history and philosophy of medicine. Trained in philosophy and biology, Juengst served as the first chief of the NIH's Ethical, Legal and Social Implications committee at the National Center for Human Genome Research, and he has also served on the NIH's Recombinant DNA Advisory Committee. Contact 216-368-6207, etj2@cwru.edu.
• Dr. Norman Fost is a professor of pediatrics at the University of Wisconsin in Madison and director of the program in medical ethics. He is chairman of the Human Subjects Committee and the Hospital Ethics Committee and director of the Child Protection Team. He has written about hospital ethics committees and the use of enhancing medical technologies. Contact 608-263-8562, ncfost@facstaff.wisc.edu.
Scott Sanders is director of the Social Work Program at Cornerstone University in Grand Rapids, Mich. He has taught ethics courses and conducted ethics workshops for social workers. Contact 616-676-4153, scttsanders@gmail.com.

IN THE SOUTHWEST
Dr. H. Tristram Engelhardt Jr. is a philosophy professor at Rice University and a professor of medicine at Baylor College of Medicine, both in Houston. Engelhardt is a member of the Center for Medical Ethics and Health Policy at Baylor. He is editor of the Journal of Medicine and Philosophy, co-editor of Christian Bioethics, co-editor of the Philosophy and Medicine book series, co-editor of the book series Clinical Medical Ethics and editor of the series Philosophical Studies in Contemporary Culture. Contact 713-348-2491, htengelh@rice.edu.
Baruch Brody is a professor of biomedical ethics and director of the Center for Medical Ethics and Health Policy at Baylor College of Medicine in Houston. He is also a professor of humanities at Rice University and director of the ethics program at Methodist Hospital. He has written widely on many topics in bioethics, including abortion, life-and-death decision-making and drug research and testing. He has also served on the NIH's Recombinant DNA Advisory Committee, which reviews gene therapy trials. Contact 713-798-3505, bbrody@bcm.edu.
John A. Robertson holds the Vinson and Elkins Chair at the University of Texas School of Law in Austin. He has written and lectured widely on law and bioethical issues. He is the author or editor of five books in bioethics, including The Rights of the Critically Ill (Bantam, 1983) and Children of Choice: Freedom and the New Reproductive Technologies (Princeton University Press, 1994). He is chairman of the Ethics Committee of the American Society for Reproductive Medicine. Contact 512-232-1307, jrobertson@mail.law.utexas.edu.
Mark J. Cherry is a philosophy professor at St. Edward's University in Austin, Texas. He is co-editor of Allocating Scarce Medical Resources: Roman Catholic Perspectives (Georgetown University Press, 2003), senior associate editor of The Journal of Medicine and Philosophy, senior associate editor of Christian Bioethics and editor in chief of HealthCare Ethics Committee Forum. His book For Sale by Owner: Human Organs, Transplantation and the Market (Georgetown University Press, 2005), explores the ethics of selling and buying organs for transplantation. Contact 512-448-8536, markc@admin.stedwards.edu.

IN THE WEST/NORTHWEST
• Dr. Wylie Burke is a professor and chairwoman of the University of Washington's department of medical history and ethics in Seattle. She is an expert in the implications and appropriate use of genetic information in clinical and public health practice. Her research addresses the bioethical and health policy implications of genetic technology. She has a doctorate in genetics and is also an adjunct professor of medicine and epidemiology and an associate member of the Fred Hutchinson Cancer Research Center in Seattle. Burke has served on the NIH National Advisory Council for Human Genome Research and the Secretary's Advisory Committee on Genetic Testing. Contact 206-221-6548, wburke@u.washington.edu or through her assistant, mmitchel@u.washington.edu.
David Magnus is an associate professor of pediatrics, medicine and philosophy at Stanford University, where he is director of the Stanford Center for Biomedical Ethics and co-chairman of the ethics committee for the Stanford Health Center. He has written on the history and philosophy of biology and bioethics, particularly on issues concerning genetic technology. Magnus recently served on the National Research Council Ad Hoc Committee on the Bioconfinement of Genetically Engineered Organisms, and he served as a consultant for the World Bank on food security and biotechnology. He is a member of the Secretary of Agriculture's Advisory Committee on Biotechnology in the 21st Century. He is co-editor of Who Owns Life? (Prometheus Press, 2002). He serves as associate editor of The American Journal of Bioethics. Contact 650-723-7735, dmagnus@stanford.edu.
Mildred Cho is associate director at the Stanford University Center for Biomedical Ethics and an associate professor of pediatrics (genetics). She has training in science and health policy. She sits on advisory boards for the National Human Genome Research Institute and the American Association for the Advancement of Science Public Policy Directorate. Cho focuses on the ethical and social impacts of genetic research, genetic testing and gene therapy and how conflicts of interest affect the conduct of academic biomedical research. Her current research projects include a study of factors affecting patients' and practitioners' use of genetic tests for hereditary breast and ovarian cancer, a study of the roles of heredity and race or ethnicity in the stigmatization of genetic conditions, ethical issues in pharmacogenetics and bioinformatics, a study of the effect of gene patenting on the delivery of clinical genetics services, and an analysis of university policies on academic-industry ties. Contact 650-725-7993, micho@stanford.edu.
Henry "Hank" Greely is a law professor at Stanford University who specializes in health law, genetics and law and biotechnology law. He is the lead author of Cloning Californians? Report of the California Advisory Committee on Human Cloning. He is also a former clerk for Supreme Court Justice Potter Stewart and has served as chairman of the steering committee for the Stanford Center for Biomedical Ethics, ethics chairman of the North American Committee of the Human Genome Diversity Project, and chair of the California Advisory Committee of Human Embryonic Stem Cell Research. He is one of the founding members of the Neuroethics Society. Greely has helped develop rules for conducting research among indigenous peoples. Contact hgreely@stanford.edu.
Dr. Bernard Lo is director of the program in medical ethics and a professor of medicine at the University of California at San Francisco's School of Medicine. He has written and taught on many topics in bioethics, including research with human beings, AIDS, neuroethics, stem cell policy, pain management and end-of-life care. He wrote Resolving Ethical Dilemmas: A Guide for Clinicians (Lippincott, 2005). Contact 415-476-6240, bernie@medicine.ucsf.edu.
Dr. Erich H. Loewy is founding chairman of bioethics and an associate professor of philosophy at the University of California, Davis, School of Medicine in Sacramento. He trained as a cardiologist. Born in Vienna, Austria, Loewy escaped soon before World War II and has written about health care ethics, terminal care and cross-cultural bioethics. His main interest is social justice in medical care as well as across the whole spectrum, from poverty to racism and the Holocaust. Loewy's research interests include health care systems and allocation, the problems of clinical medical ethics and ethical issues in genomics, including stem cells and cloning. He is the author of 120 peer-reviewed papers, 48 book chapters and 12 books. Now emeritated, he continues to teach, write and lecture internationally. Contact 916-635-7555, ehloewy@ucdavis.edu.
Dr. Theodore Friedmann is a professor of pediatrics, director of the gene therapy program and chairman of biomedical ethics at the University of California at San Diego. A pioneer in gene therapy, he proposed in 1972 using viruses to carry normal genes into defective cells. He also explored the medical, ethical and public policy problems posed by modern genetic technology. In 2002, he was named chairman of the Recombinant DNA Advisory Committee, a 21-member committee of scientists, clinical investigators, ethicists and public policy experts that helps oversee federally funded research involving recombinant DNA technology. Contact 858-534-4268, tfriedmann@ucsd.edu.
Gregory Stock is director of the Program on Medicine, Technology and Society at the University of California, Los Angeles, School of Public Health. His research interests include the implications for society, medicine and business of the Human Genome Project and developments in molecular genetics and bioinformatics. His books include Redesigning Humans: Our Inevitable Genetic Future (Houghton Mifflin, 2002), and Engineering the Human Germline (Oxford University Press, 2000). Contact 310-825-9715, gstock@ess.ucla.edu.




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